{"id":229,"date":"2026-01-19T13:20:42","date_gmt":"2026-01-19T13:20:42","guid":{"rendered":"https:\/\/www.emiliepinelcaron.com\/?page_id=229"},"modified":"2026-01-26T16:46:20","modified_gmt":"2026-01-26T16:46:20","slug":"patiente-formatrice","status":"publish","type":"page","link":"https:\/\/www.emiliepinelcaron.com\/index.php\/patiente-formatrice\/","title":{"rendered":"Patiente formatrice au parcours en soins chroniques"},"content":{"rendered":"\n

Actuellement \u00e9tudiante \u00e0 l’Universit\u00e9 de Bordeaux<\/a>, je pr\u00e9pare un dipl\u00f4me universitaire de patiente formatrice au parcours en soins chroniques. L’objectif \u00e0 terme est de former les soignant.e.s et les \u00e9tudiant.e.s en sant\u00e9<\/strong> – m\u00e9decine, psychologie, pharmacie, infirmier.e – au v\u00e9cu exp\u00e9rientiel patient<\/strong>.<\/p>\n\n\n\n

Devenir patiente experte, partenaire & formatrice<\/h2>\n\n\n\n
\n

Devenir patiente experte, partenaire et formatrice, c’est non seulement donner du sens \u00e0 mon parcours, mais \u00e9galement contribuer \u00e0 un meilleur v\u00e9cu de la maladie. Que ce soit directement aupr\u00e8s des patient.e.s, ou des soignant.e.s d\u00e9j\u00e0 en exercice ou en formation, partager mon exp\u00e9rience et d\u00e9velopper l’alliance th\u00e9rapeutique<\/strong>, c\u2019est participer \u00e0 une relation de soin plus humaine, empreinte d\u2019\u00e9coute, de confiance et de r\u00e9ciprocit\u00e9.<\/p>\n\n\n\n

\"\"<\/figure>\n<\/div>\n\n\n\n

L\u2019\u00e9ducation th\u00e9rapeutique du patient<\/strong> (ETP) me tient particuli\u00e8rement \u00e0 c\u0153ur, car elle permet de renforcer l\u2019autonomie, la compr\u00e9hension et les comp\u00e9tences n\u00e9cessaires pour que chacun devienne acteur de sa sant\u00e9.<\/p>\n\n\n\n

\n
r\u00e9server une intervention<\/a><\/div>\n<\/div>\n\n\n\n

\u00ab\u00a0Les patient\u00b7es expert\u00b7es sont des personnes atteintes de maladies chroniques ou de pathologies invalidantes dont l\u2019exp\u00e9rience personnelle est consid\u00e9r\u00e9e comme une expertise par des institutions, associations ou collectifs. Elles peuvent \u00eatre sollicit\u00e9es par la recherche, dans la formation des soignant\u00b7es ou dans les prises en charge d\u2019autres patient\u00b7es. Cette l\u00e9gitimation du \u00ab savoir patient \u00bb, th\u00e9oris\u00e9 par la sociologue fran\u00e7aise Madeleine Akrich, a \u00e9t\u00e9 obtenue gr\u00e2ce aux luttes des malades, par exemple, pendant les ann\u00e9es 1980 et 1990, au plus fort de l\u2019\u00e9pid\u00e9mie de VIH-sida.\u00a0\u00bb <\/p>\n\n\n\n

Glossaire La D\u00e9ferlante<\/p>\n\n\n\n

\n

Je fais partie de l’association Des \u00e9toiles dans la mer et suis r\u00e9f\u00e9rente sur la Gironde. Nos actions visent \u00e0 financer la recherche m\u00e9dicale, soutenir les familles et sensibiliser le grand public sur le glioblastome, une tumeur c\u00e9r\u00e9brale agressive. <\/p>\n\n\n\n

\"\"<\/a><\/figure>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Actuellement \u00e9tudiante \u00e0 l’Universit\u00e9 de Bordeaux, je pr\u00e9pare un dipl\u00f4me universitaire de patiente formatrice au parcours en soins chroniques. L’objectif \u00e0 terme est de former les soignant.e.s et les \u00e9tudiant.e.s en sant\u00e9 – m\u00e9decine, psychologie, pharmacie, infirmier.e – au v\u00e9cu exp\u00e9rientiel patient. Devenir patiente experte, partenaire & formatrice Devenir patiente experte, partenaire et formatrice, c’est […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"templates\/template-full-width.php","meta":{"footnotes":""},"class_list":["post-229","page","type-page","status-publish","hentry"],"yoast_head":"\nPatiente formatrice au parcours en soins chroniques - Emilie Pinel Caron<\/title>\n<meta name=\"description\" content=\"Etudiante \u00e0 l'Universit\u00e9 de Bordeaux en DU de patiente formatrice au parcours en soins chroniques pour former les \u00e9tudiants en sant\u00e9 au v\u00e9cu exp\u00e9rientiel patient\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.emiliepinelcaron.com\/index.php\/patiente-formatrice\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Patiente formatrice au parcours en soins chroniques - 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